Vitiligo Support Forum

hello,

my name is Hike, i am 13 years old, i have vitiligo, but im miserable,

usually when you have something like this, you turn to your parents,.... but i can't.

whenever i try to talk to my mom about it or ask for help, she usually tells me to shut up, or be quiet,

she is constantly respectful and nice to my older brother, who does not have vitiligo, and it makes me wonder, if the only reason she is very respectful to him is because, he does not have vitiligo, and thinks he will have a sucessful life becasue he doesnt have it,

i constantly go through misery at school, thank god i dont have vitiligo on my face, but i have it everywhere else, through every second at school, i am stressed, scared, and i pray no one brings it up, because sometimes i just feel like quitting, stopping, because i can not take it anymore.

my dad, is hardly ever home ( i only see him for about 1 hour a day ) and hes usually the same way, he tells me to get over it.

i feel very, very lonely, someone please tell me what i can do, makeup is not an option, or cosmetics, because my parents dont have money, so please please help.


Thank You,

Hey Kid

Y r u so depressed? It could be just a feeling you have? Why dont you ask your parents to take you to a local specialist - this is curable

This is not a disease and it is not a problem if you have it - live your life as normally as you can.

Which part of the globe are you in?

Hey Hike,

Im a 21 year old guy in college with vitiligo

you remind me of myself when I was your age, I too have an older brother who was "taken care of" more then I was. I always thought it was because of the vitiligo too.

my dad also is hardly ever at home, and I also feel very lonely at times

the only thing I can tell you is that what you are going through at your age is really tough. I felt the same way all through junior high and highschool.

unfortunately, the best thing you can do is study hard, get a job, and play video games

thatll take your mind off of it, but kid I wont lie to you

you have one heck of a tough life ahead of you, sorry

Hike,

This stubborn disease could be treated. If your parents do not have money and you are committed to uproot this disease, I can suggest you one very successful treatment. "Yoga"

If you have question, send me reply.

Regards,

why the hell are you saying yoga is a successful treatment


if the kid does yoga and it doesnt work (which it wont), then he will be even more sad and hopeless

watch your damn tongue

Yoga is not a cure for vitiligo.. I do yoga for 90 minutes a day... Yoga is a lifestyle thing and helps with healthiness of body... AND a BIG AND - this needs an expert supervision.. cant imagine a kid being able to handle so much stress...

Hey kid! I really wish we could help you..but here is my simple advise - cure exists for you - discuss it with your parents first and then discuss with your local doctor... dont listen to too many suggestions on "miracle cures" coz their aint any - no homeopaths, no ayurvedics....

And for yoga, diet control blah blah... son my suggestion - forget all nonsense and focus on ur studies.. make a career for urself.. and stop even thinking about anything negative - you need a healthy thinking for your future... there are many people who have serious learning and other problems in life but have risen to become great leaders.... and am sure you will have that 1 special thing in you that will make you special someday... so believe in urself and forget all nonsense cures... just live ur life happily and if possible discuss ur cure with a local specialist...

hii
    Can u please tell me more about how yoga can help cure vitiligo.
My contact: aamitbcp@gmail.com

thanx

Hey Guys,
 I am on this forum because I also have vitiligo since 2001. I tried so many medications, but no result. It may be because I was not consistent and stopped treatment in the year 2003 as I got busy with my studies. Vitiligo keeps spreading at a very slow pace (as of today ~4-5% of my body). Last year, September 2009, I started medication again and it is helping me. It stopped spreading further and also I can see boundaries around the white patches. Later at the end of the year I started doing Yoga, (as I mentioned that it helps). Let me correct myself. Breathing Yoga-inhaling and exhaling air or oxygen in different ways. You guys will not believe, small white patches started getting color of my skin and also tiny colored dots in the big paches. This is also great for keeping my body active and free of stress all the time.

Few tips: Always keep positive attitude. Never talk negative. Do not eat salty food and drink milk at the same time. Wait for atleast 30 - 45 minutes. Drink more water than you normally drinks. Very little consumption of soda or no soda.

Any questions or concerns. 

very happy that you are getting repigmented. Trust me hearing that you are seeing positive results is sweet music to ears of anyone who accesses this forum.

I also do yoga - especially Kapalbhatti and I do yoga for 90 minutes a day.

My point is very simple -

Hike is a 13 year old kid and too young to adopt the harsh regime of yoga which needs discipline and patience plus an expert coach and if he does not see the results as you are able to see - he will be disappointed only adding to his existing stress.

And to me yoga is not a cure for Vitiligo - it is a process to detoxify yourself and be healthy internally - which even I am experiencing as you are experiencing. My doctor's view is that many times this disease will go on its own (even without treatment).

My wishes to you to control and cure yourself.

Cheers,

Hi,

My name is Joe and I have had vitiligo on my neck and face, but nowhere else, for over 15 years. So I actually have the reverse situation as you, Hike.

Your parents reaction may be because they simply don't know what to do and may feel helpless to help you. People somethimes get mad at the situations they can't fix or make right. That doesn't mean they love you any less or favor your brother more, it could actually mean they feel like they are failing as parents.

As far as stressing at school, I bet (actually I know) that the other kids are just as stressed about somthing in their lives, such as bad grades, acne, thick glasses (I had glasses that were as thick as coke bottle bottoms), etc... Trust me, everyone always something that they are stressed about.

People ask me about my vitiligo all the time and it's fine. They're not trying to be mean or make fun, they're usually just curious to know what it is and how i got it. People by nature are curious about anything different.

I don't know if this is helpful at all, but I have been looking around the internet for any new treatments for vitiligo and ran across something interesting. I just found this a few days ago. Some people have been diagnosed with food allergies and when they stop eating the foods they are allergic to, their vitiligo starts to repigment. This is the link to a blog I found :

http://ibstreatmentcenter.blogspot.com/2009/03/vitiligo-and-food-allergies.html

It sound like most of these people went on gluten free diets. It sounds like some people genetically can't process gluten. A lot of foods contain gluten. When your body is being overworked trying to handle the gluten (or whatever food it is allergic to), then your immune system basically can't cover everything and you get an auto immune disease, like vitiligo. Remove the food that the body has problems with and now the body can work to catch up.

Hope this helps.

Joe

Hi there!!!-)))))
I have a son, he is 11 years old, and he developed vitiligo patches 6 years ago. We tried many different treatments, diets, etc. I was desperately searching in Internet for the solution. And - I found DEAD SEA treatment!!!! We went to Jordan 2 years ago....and results were amazing!!!!! Now - we go regularly there, patches are "closing", pigment is coming back!!!!! You should go there definitely!!!!
Good luck and keep hoping for the best!!!!

Hike-Hello...My name is Justin. Im 30. I started to get my spots when I was 9 years old. Just as I was going in Jr. High. Kids can be cruel. You can't listen to any of them. My spots started on my knuckles, elbows, and kneecaps. I used to always wear long sleeved shirts and pants. 365 days of the year. I grew up in Florida so that kinda sucked most of the year. Eventually I had to come to terms with it. I feel like we are truly special. Only 2 million people have this. My parents never understood either. Lee Thomas wrote a book, you should read it. He's a TV Reporter who has vitiligo. It made me happy to read it. Hit me up if you need to talk, no lie.

---

This is not here...

I am suffering from Vitiligo and took every treatment that ws suggested to me. Finally I started taking this medicine and sitting 1 hour in the sun. Within 15 days I started getting the pigment.
See the results here http://reelmccoy.tv/vitiligo/photos.htm

Do not worry or get depressed. I found a very less expensive treatment for myself and after suffering for 3 years and trying everything I finally found relief and magical results.

I am suffering from Vitiligo and took every treatment that ws suggested to me. Finally I started taking this medicine and sitting 1 hour in the sun. Within 15 days I started getting the pigment.
See the results here http://reelmccoy.tv/vitiligo/photos.htm

Hello my name is Erica. I am turning 14 soon. I have had vitiligo for about a year now. I have a medium sized spot on my forehead and another small one in the center of my forehead. Then i have some on me knees and random spots on my body. I have some grey hair from spots on my head so for that i get made fun of. I believe i have a stress disorder so that also can cause the vitiligo to spread from what my skin doctor has told me.

I feel the same with my mom. I have people ask me all the time if i am a burn patient and it hurts. It doesnt help when parents arnt supportive. We live from pay check to pay check so we dont have much money either.

I am totally self concious. I am just going into high school so i no that the critisism might increase.

I grew up in Florida the "SUNSHINE" state. So the UBV rays are really harsh. They are spreading very slowly.

What i can give you for advice is sit in your room every day for some time and just listen to music (if you can) read, and just relax. It helps. Also, find friends that will support you and accept you no matter what. I have friends offering up to try and help be bleach my skin and they are always searching for remedies.

Put on sunscreen whenever you go outside.

I still go out, date people, wear shorts, wear dresses, and live a normal life. If you ever want to talk, just send me a message on this website and i will give you my personal email =) i would love to talk