Vitiligo Support Forum

Mate would have loved to post pictures but alas I dont have the permission.

Here is my progress as of 13/2..

Eyes - Slow... continue to be pink - no freckles seen

Nose - 1 spot partially repigmented at the tip of nose... other 3 spots - getting smaller

Lips - They are pink.. i am a very hillarious scene right now... due to sun exposure am all tanned and my lips are all pink.... so i sometimes laugh looking at myself in mirror.. but damn do i care how i look?

Neck - 3 spots gone... the penny sized one has grown smaller (visible from edges) and a small freckle visible in center

Chest - Had 3 large and 3 small spots in the center - lots and lots of brown freckles in the center most large spot... the 3 small spots - freckles are visible

Armpits - very small spots - turned pink.. cant see any freckles yet (amazing that 1 large spot in armpit was only visible as I started exposing to sun a lot - probably due to tanning - was not even visible before)

Abdomen - Small spots - all turned pink (they also became visible only after sun exposure - earlier they were merged with skin)

Legs - V small spots - no color change (again got exposed after tanning)

Finger tips/ Palm of hand/ Arms (above the palm) - Lots of small spots on the arm are completely vanished... brown freckle (1 small) visible on two thumbs (and growing) - small spots on the dorsal side of fingers gone - finger tips (continue to remain pink)

Folks good thing - I have a baseline as I have started my medications - I can see spots repigment and signs are encouraging...

I met my doctor 1 week back and asked about the medications - his response was that he is not giving me medications for repigmentation (apparently that process is a long time away) but he is giving me medications to stop the rapid spread - and in this process some repigmentation will happen on its own.

Another thing - Babchi plus neem oil and sunlight - I have started sun exposure now for 1 hour in middle of afternoon when I get time - I have so far no side effects (touchwood)

I have received emails from some of you asking on side effects of allopath medicine - the biggest side effect is weight gain (I have gained 2 kgs since starting the course on January 1st) - but then that is easily addressable - I have started a rigorous regime of jogs/ walks/ swimming/ weights...

On diet front: I AM EATING EVERYTHING AND ANYTHING YET SEEING REPIGMENTATION - I suggest stop googling on what you can eat and what you cannot eat - get as natural in your diets as you can.... there is no diet restriction for vitiligo unless you have an associated disorder for which you need to have diet control - remember "treat all associated disorders with vitiligo" on their own merit...

anyone keen to write to me..

i have changed my email to pete_puneet@yahoo.com

You seem to post your (same) postes on every topics (almost) - makes me worry.

Anyway, why not permited to post your pictures ... there is no rules in forum, forbidding you to do so... and you can cover your eyes :) so there is nothing to stop you from that.

Convince us with VISUAL things
and not just with words ... would be better.

By the way.

How about you purchase Babchi oil and Neem oil in india then I send money from UK and you ship it to me ?!

Deal?

Firstly.. guide me how to post pictures on this forum - will do that..

Secondly.. understand that I have started my medication course from January 1st, 2010 and Babchi from December 4, 2009 ... the repigmentation process is very slow... have no issues sharing pictures... I share a progress... and that is like a log for me... "progress log"....

Thirdly ..I post on this blog to help the folks who access this site .. i am under no obligation to explain or prove myself... There are enough quacks or so called experts who will claim a cure and will mislead you all... I have a strict medical and health regimen supervised by 3 doctors to remove the root-cause that is causing the disorder... they monitor my progress.. I write here to share an experience... and a journey ... and I like being positive in helping others...

Fourthly .. I dont think you have read the posts a bit carefully... I am not and will not recommend you a Babchi + Neem oil only approach (Topical only) - It has its limitations (especially in a country like UK - where sunlight is a big issue) and you will have another of frustrated attempts added to your past attempts .. and then the blame would fall on me...

So my suggestion - You wish to cure your disorder - go to a skin specialist... discuss with him your options .. in one of the posts I have posted a name of the book "Drugs for Vitiligo".. read it first before you embark on any form of cure process...

I would love to send you the Babchi & Neem oil.. suggest check the UK customs laws AND a BIG AND for you - do not start any medication or PUVA therapy without an expert medical supervision locally ... in absence of that you will either get burnt badly or will have blisters... and I aint gonna suggest you that path..

Man

You should come to UK and see the doctores obver here.. they are useless!

They took me to a Dermatologist
and what did she say ?? *Ah you have to live with this, u cant do nothing at all*

Yeh them motherfuckers need some brain!

In UK the sun is weak, if there is any sun then in summertimes, if we are lucky and sometimes we get normal sun light! but I heard about those "lamps" that can be used ... UVB or whatever they are - or is that PUVA ?!

anyway, I already explained how to post pictures in other topics of yours.

By the way, at moment, I am taking;

Folic Acid - 2000ug a day
B12 - 2000ug a day
B6 - 100mg a day
Brewer's Yeast 1000mg a day

BLACK SEED OIL (http://www.blackseedoil.co.uk/)
Drink 1 teaspon mix with milk a ManukaHoney 2 times a day, morning and before bedtime and I also rub the oil into the spots.

Sometimes:

I mix 3 creams and rub on spots:

- Esperson mite 0.05%
- Betamethasone Valerate Cream 0.1%
- Pimecrolimus Cream 1%

========

PS: Noticed some new small white sports on my back, which were not there before... maybe since a month! but also noticing down my gential area, it seems to me that a white spot that used to be biger or white has faded a bit.. dnt know maybe its just my ilusion!

I seriously would love to help you... I wish I was a dermatologist who understood the medications and could guide you..

If there is a way for me to post pictures I will do it.. but someone has to guide me how to do it on this site (I believe it is administrator who can allow you)..

Now coming to your medication - can you call Dr Pasricha anytime on Monday to Friday at these numbers:

+91 11 26241283
+91 11 26241031

Call him between 10 am to 1 pm IST and 4 pm to 6 pm IST (UK is 5 and half hours behind India)..

As far as I can compare your medication with mine - you are not on right track... but still discuss with him over phone:

1. You are in UK and what are your options
2. How can you purchase these medications - these are Glaxo Smithkline medicines - so available all over the globe - but I sense they will only be available on prescription of a registered medical practitioner - the biggest side effect u have to manage is weight gain...

I wish the medicine system in UK is a bit more friendly as it is in India..

here you go buddy

http://img144.imageshack.us/gal.php?g=lefthandjan3rd.jpg

Have put up pics comparing January 3rd, 2010 (when I started meds) with February 26th (today) - only put up hands and arm to indicate to you that the medicine is having an effect.


cheers
Puneet

Hi

Yeh just had a look at pictures
however I cant not see the difference which picture is taken before n which after... i looked at the hands, fingers n tried to figure out where the colour has recovered.

Thanks

cant help you buddy if you cannot make differences. try to see the pictures carefully and you can make the difference.

I am not pitching for any doctor or a company or a product to you. I have given you a general direction through what I do and the research I have read on Vitiligo - choice is entirely yours to select what should be the best course of action for you.

Cheers

if u enlarge the pictures.. on the right hand side in the picture description u wld see the file extension..
now u r free to compare..
happy curing urself.
cheers

Pictures of neck's repigmentation.

The the pic where the neck is clear is as of March 13.. and rest all are as of January when I started the treatment.. if you click on pictures you will see the file description on right

http://img169.imageshack.us/gal.php?g=neckjan3.jpg

mashallah, mashallah :)
http://img62.imageshack.us/i/neckmarch13th.jpg/
this is the picture taken on 13th March.

Nice progress and you started the treatment in Jan, meaning after 3 months the small spots have gone!

difficult to show in pictures but am seeing small brown freckles in the larger spots... my spots are pinkish red and not white and on a camera the brown freckles r v difficult to bring out else i would have put up the progress on the larger spots too... but the best thing i feel is the emergence of brown freckles on all the large spots

Brown freckles all over the palm of my hand... it is an amazing feeling now..