Vitiligo Support Forum

Where did you get your pepper oil?

Is Bioperine the same thing?

Hi, ot it from a health food store.  It looks like biperine is piperine extract which may be even better.  I saw this online.

"Bioperine: Bioperine is a standardized piperine extract obtained from the fruits of the Piper nigrum L. (black pepper) and/or Piper longum L. (long pepper) plants that are cultivated in the damp, nutrient-rich soil regions of south India. The delicate pepper berries are hand harvested just prior to ripening and then sun dried to assure optimum maturity and quality.

The extract of piperine, developed by Sabinsa Corporation in its patented form of Bioperine, has been clinically tested in the United States and shown to significantly enhance the bioavailability of supplemented nutrients through increased absorption."

Also this website.  Maybe better.  Hope its not just available in the US.

http://www.bioperine.com/black_pepper.htm These are pills I think???

I'm not sure if the trial used pills or oil... Can you make it out?  I will ask tomorrow

Hi, Just spoke to Kings College and they said thenext stage of trial are being done at the Oregan health and science university.  They also said any actual treatment and medication isn't expected for about 10yrs.

The lady at the college is going to ask the researcher in oregan if we used piperine or black pepper oil, if it willhave a an effect although not as great as they compound they have developed.  She will get back to me with the answer.

I also asked if any trial are planned in the UK, she said no only in Oregan, but they will check again for me. 

Looks like if you wantto be art of a trial call the Oregan University.  Oh Well. 

Will let you know what she says.

Thanks for the info, I wished we lived close to Oregon but its all the way across the country from where I live but you never know what could be worked out.  Do you know how I could get intouch with them?

ok, people.. vitilax and the oil arrived yesterday so today my half year journey has started.

taking the capsules 2 times aday is easy. after breakfast and dinner. the oil, i'm not feeling too comfortable with it. i dun mean the texture. as i told u guys before, i'm freckle prone. actually UV sensitive too. i get itchy skin from UV unless i've applied sunscreen. just now, i washed my face, applied a good sunlotion, then wipe clean the white patches with a cotton bud and cleansing liquid. my apartment is facing west so as the sun was yet on the top of the building, i placed a little mirror at the window and directed the sunlight right onto the Vitiligo, for 10 mins.  the instruction says 2-3 times aday but if sunlight exposure is recommended, how can somone do that 2-3 times a day if one has to work. can't do it in the evening then? and the most important thing to me is that i have to see people, work and therefore i have to put make up on. the question is, should i wipe off the oil then use cosmetics? would b a waste then, wouldn't it? hm...feeling a little lost here. i might just apply it first thing in the morning(i usually get up at 4-5am)and before bed. then use concealer that doesn't contain SPF when i go out...

and ...haha.. after reading the post about black pepper... hahah... last night, i actually added black pepper to my salad which i'd never done before LOL 

ok, sorry oil, i will have to wipe u off now~

Babybox

HI,  I woudl ask Dr Li.  But the idea is to apply when you can get sun exposure although it should helo when applied throughout the day without sun exposure.  I have some and tried it but have an allergic reaction to the oils out there. My skin goes red without any sun.  It sirritates to much, so cant use it.  I am counting on internal treatment and just sunlkight. 

If you freckle easy and are sensitive then try it on one area go into the sun. You'll see the reactiona and if your over sensitive the following day.  I would ask Dr Li though.  She told me not to use it as I just go red all the time.

Black pepper will not do anygood to Vitiligo when eaten.  Its the derivative "Piperine" which does the stuff when applied to the skin. 

Raj. sorry to hear that u had an allergic reaction to the oil. and yea, will ask Dr.Li then. but meanwhile i will just do it without the sun. i feel more comfortable this way. actually felt kinda weird today when i was getting sunlight exposure at the window. i've been running away from the sun half my life, haha..

and..haha.. sorry, the black pepper thing was just a little joke to make my salad more interesting, actually made my boyfriend very worried too as i had this strange grin on my face while i was eating. haha.. i did read ur posts and researches, haha.. anyway, it tasted quite good.

Raj:

Your information has been so informative--and encouraging. I have a daughter (13) who has a spot on her thumb. I discovered it last summer when she pointed it out to me. I took her to a medical doctor last year and then to a dermatologist (one of Dallas' finest) in January. The doctor is convinced that my daughter's condition is NOT vitiligo but seems to have been caused by some trauma.

She explained to me that vitiligo is symmetric and she is certain that my daughter's case is not vitiligo. She told me to make sure that my daughter doesn't pick at her thumb and to keep it moisturized and the pigment should return. However, I've been watching the thumb and it does appear to be spreading, although slowly. Everything that I've read so far that deals with pigment loss is classified as vitiligo.......

I'm taking my daughter back to the same doctor on this Friday. I am going to order tests and also have her immune system tested. I was thinking along these lines when I discovered and read your post. I absolutely believe that the immune system can play a part in depigmentation and/or repigmentation.

Thanks for all of the information on vitamins and treatments. I plan to start  her with vitamin C, folic acid and the vitamin B (hopefully I can find it) and a change in her diet. She is at that age where hormones are all over the place and her behavior is sometimes at its worst! I certainly hope that we get her back on track. I'm always checking her body for spots and so far, there are none other than her thumb (thank God!). I worry for her sometimes because she is a beautiful, outgoing and athletic girl, and I'm not sure how vitiligo would affect her. I think she is worried about her thumb and as a parent I'm ready to do all I can to help her.

In my prior research I kept reading how vitiligo is incurable. It basically sounds as if there is no hope once you have it and I totally disagree. I'm a big believer in diet and exercise. If God made the body to heal itself, then I believe that it can heal itself when we put the right things into it. Again, thank you and everyone for your comments. I've gotten a lot of encouragement from this forum.

 

Hi, I am glad you have been encouraged.  Being on these forums really help me.  Vitiligo is not only symetrical as I have Segmented which only isolates itself to one side, so your Dr is incorrect.  However; it coudl be other things a fungal infection.  Your Dr should test for that as well.  Trauma can cause Vitligo also.  A friend of mine had it when she was a little girl by scraping her face on the ground when she fell over, suddenly her pigment started to dissappear on the part of the face she scraped and spread.  As it was on her face it was concerning for her parents but not her as she was young and only interested in playing.  This really helped her recover as she wasn't worried or concious of it.  Its doesn't look like your daughter fell but trauma can be in the form of over stress, anxiety, worry, etc.  Or it could be something internal, I.E Liver, Thyroid, etc.  I'm not a Dr by any means but I can only reply with my expreriences and what I have learned. 

Please try and not let your worries don't spill over and stress your daughter so she becomes unduly conscious and worried. It may make it worse.  My friends parents, being of indian decent, ordered homeopathy tablets from India which were targeted to heal from the inside.  Not sure what.  She took those over a period of 18months and changed her diet (Cut out Dairy, Meat).  She eventually regained all her colour and it never came back.  The young recover faster then us oldies :-) 

There is no harm in testing her internal levels to be sure all is OK but you may need to make changes in diet and possibly some treatments to regain colour.  I may be an idea to buy some of the topical treatments that increase skins photosensitivity.  When in the sun it should help her colour return.  I'm sure yours will return as everyone who I have spoken with who had a little when they were young all are now fine, but did say it took a very long time to repigment completely. 

Never give up as that what defines a winner.  Its a trial unfortunately and the ones who are patient and persist often reap the rewards, as is the case with most things in life I guess.

Hi.  Sorry I haven't been on in awhile.  My name is Tiffany Francois.  I live in Charlotte, NC and I attend CPCC right now with a double major in forensics and psychology.  I have read a few replys to my post, and I do understand how you can be skeptical about me and my posts.  I am still taking my pills so my treatment has not improved completely.  I am also taking a B-12 supplement becuase I heard that B-12 promotes new tissue growth and is a vitamin that people with Vitiligo lack in their systems.  I am not sure what else you would like to know, but I am happy to answer any questions you have.  I havent really been suffering any side effects, I do have a doctor's appointment coming up soon sometime in april i believe, and I am planning on getting a thorough physical just as a precaution to catch and/or find any underlying problems.

ann,

I am sad to say that i have not heard anything from anyone else about pigmentum.  i am really hoping i continue to have progress becuase i have had vitiligo for 14 years and i still have not accepted it as a part of me.  i am putting a lot of faith and trust into this product and i really hope the recovery of not only myself but everyone else who suffers from vitiligo becuase i know the damages it causes physically, socially, mentally, and spiritually.

Hi Tiffany,

I'm happy you responded. We feel its a CON as the company never responds to emails or queries and are not even registered at the address they say they are.  I ONLY stopped taking pigmentum as I didnt know what was in them.  Blind faith was worrying me as my Liver was an issue for me when my Vitiligo started.  Putting pills into my body without knowing what's in them was an issue.  It's good to know its working for you. 

Please come back and let us know if you anything comes up in the tests, particularly your Liver.  It will help give some assurance to me and others.  I still have mine but may start the merryclinic stuff for 6months first.  I have also started Methylcolabamin B12, Folic, C and some anti-oxidants.

Please keep in touch.   I personally get a great deal from this forum.  Thanks

Thanks stevenswifey for coming back to the forum, its hard to know who to trust because some of these companies may put false post on just to sell their products.  When my pigmentum came and I saw that it came from Pakistan and not New Zealand it was alarming to me.  Also on another forum there was a post that stated that they had a friend that lived in New Zealand and they checked the address and there was no such address, so how do you trust a company that has a fake address and doesnt show what is in their product and will not answer questions.  Plus there are no other post from people that say pigmentum worked.  So thats how I came to the conclusion that its a scam, plus I went to the vitiligosupport.org website and thats what everyone says.  There is alot of info about it on that forum.  However, I would like for you to keep us informed on your success because thats what we rely on is each other so I appreciate you so much and your posts.  How long have you been taking pigmentum and how much success have you had?

Stevenswifey,

Do you think its the pigmentum helping or the b12?  Did you start both at the same time?