Vitiligo Support Forum

I am new to this forum and from reading the posts here I find it to be extremely informative and supportive.  My wife and I are desperate for help and we appeal to the parents out there who are in similar situation to share with us their experiences with the treatment of this condition.

Our beautiful daughter is only two years old.  She has had this condition for almost 4 moths now- well at least since we first noticed a small white patch just below her lower lip.  Now she has white patches on her right cheek, on both eye-lids, on her forehead, chin, arm, buttock, and finger tips.  When we first saw a dermatologist at the beginning of May, it was only a small patch below the lip but it spread like wild fire within a short period of time.  The doctor's initial diagnosis was actually eczema and, accordingly, my daughter was prescribed protopic tacrolimus ointment which we applied for almost two months.  Having seen no improvement and seeing her face lose more pigmentation instead, we decided to stop applying protopic at the beginning of this month.  Seeking second opinion, we took her to the emergency department of a children's hospital so that we can get referral to the dermatology clinic.  We did get referral but we have to wait until September to see a dermatologist.  The discharge diagnosis from the emergency physician was obviously vitiligo which I suspected all along.  Yesterday we saw our family physician to discuss what we should do while we wait to see another dermatologist ( we are not that keen to see the first one again!).  He said he is going to refer us to a pedaetrist to do some allergy tests.  We don't know when we are going to see this one.  We hope soon.  Our family doctor also mentioned that some vitiligo patients do use protopic with varying results.  I read on this forum that some people have used this ointment.  Can any PARENTS please share their experiences with us?  We emphasize parents because we hear that this condition is less stubborn to treat at early age/stage.  Is that true?  We certainly hope so.  It just breaks our hearts to see our otherwise beautiful and happy daughter go through this. 

We really appreciate all feedbacks.  Thank you in advance and god bless all.

Worried parents.   

hi

thank you for your offer of assistance.  like i said we are still waiting to see another dermatologist and also we are going to do some alergy tests.  we have already tried protopic and didn't help but we still haven't given up on medical treatment, so we might try different treatment next before we try herbal remedies.  in the meantime, we would be thankful if you can tell us more about the treatment that your cousin got-you know the name and details. 

 

thanks

I understand what you are going through because my 9 year old son was diagnosed in May with vitiligo. We are devastated and have been trying to seek some assistance from Dermatologists. I have been to 2 Dermatologists and had no help or suggestions for treatment. The 1st Dr. stated that it was just cosmetic and be thankful he does not have a life threatening illness. The 2nd Dr. said he does not know much about vitiligo and cannot treat him. So, I actually did some research and located another Dr. but he is not accepting any new patients. I then found another Dr. but they cannot see my son until January 2009.It has really been hard because in these 2.5 months the vitiligo has spread rapidly. He now has it on his arms,legs,hands, neck and a little on his face. I am thankful he does not have a life threatening illness but seeing this disease spread so quickly is just devastating to watch. I am talking to him about it and explaining the this does not change the wonderful person he is and that it just affects his skin. He is at the age where kids are starting to say things and he is so sensitive. I hope you find treatment and a good Dr. that understands this disease.

Thank you very much for your kind words. 

Just yesterday we took her to the emergency at a differnt hospital because the first hospital we went to we have to wait until september 3rd to see the dermatologist.  So we thought maybe the wait might not be that long at this other hospital.  We did get referral to the dermatology clinic but we have to call them on Monday to see when our appointment will be.  We hope it will be soon.  It is just frustrating wasting precious time waiting and waiting while our daughter's condition worsens.  In the meantime, we are trying our best to stay positive which is a real challenge.  We pray to God to give us the strength and patience to face this challenge.  Please keep up the positive attitude and God bless your son and everybody.

Dear Parents

I really understand your worries ,and i do feel you sadness but don t worry any more i have the cure that you are looking for. Its 100% natural and without any sides effects . If your son or daughter is young that means that he is going to recover very quick so don't waste time and take this opportunity before its late .

Many peoples where cured by this herbs among them my cousin .

My phone is :07958045255 if you require further information's   

 

Hi mybb,

  I am in the same condition as yours. 4 months ago my 2 year old son had white spots near his lips and then a  month later he had it on his body. We r really worried and we r applying protopic as per the doctor.  Please send me your contact number so that we talk

Thanks

mabcdn