Vitiligo Support Forum

i've had vitiligo for about  a year. I'm 20 yrs old, male and last year i woke up and discovered something "downstairs" that freaked me out! i had never had sex or anything so i knew it wasn't an std, i went to the doctor and they told me i had vitiligo. The dermatologist says that there's not much i can do and that, and i quote "i'm lucky because people can't see it" but he was incredibly insensitive to say that to me! I am so afraid to show anyone my body and anytime something sexually happens with someone i have to be like "hold on stop, i have to tell you something" and then they get afraid and don't believe me or even in some cases i've been broken up over it because they don't feel "sexually comfortable" This is humiliating, and for a 20 yr old male it's really destroyed any sex life! even dating is hard because i know that i ALWAYS have to tell them about this because it's there! does anyone have any treatments or doctors in NYC that they know of that are good? i know about the herbal topics and stuff and was just wondering if anyone had some success or advice. It's really terrifiying everytime i go to the doctor because i always have to take all my clothes off and feel strange!

Man, if you think thats bad. I am 20, love to party, love people, and got diagnosed with vitiligo at 18 years old, my first year in college. I didnt only have it there, I got i all over my face, and it was spreading rapidly, my eyes also. But, I am a recoverer. I have gained ALLL the pigment back in my face, turly remarkable. Doctors told me there was basically nothing I could do. UVB or those treatments would not have worked for me at all because in my case it spread. I urge you to email her, but only if you cant make the visit.

Dr. Li at merryclinic.com has an incredible treatment that pretty much saved my life. Her pills, mixed with the oil therapy (amazing) saved me from basically going insane or worse. I hope this helps. If you can spread the word about her, please do, she saved my life.

You dont have to even go to visit her if you dont want to. She is in San Fransisco. She has an online consultation at merryclinic.com and you can send her a photo if you want. I recommend seeing her though. Shes a special person. I owe her my life.

hi there

i read ur msg above... i hv a friend who is suffereing from V and has been for the last 10 years or so...ur post above looks positve.. he has tried homeopathic medicine but has no effect... upon reading this , i feel i shud go for the above... please, honestly, did that work ? how long did it take to effect ?

Thanks Heaps in advance
Anonymous

Hi

Could more people come out and give their experiences with Dr Li's treatment.  I went to the website, it talks about capsules which boost the immunity and help produce melanocytes and some other vitamins and supplements.

"Anonymous" if you try it then please let us know what the results were.

Good luck.

 

 

 

 

Hi,

****Posting is very long includes  our  personal story, medicine and blah blah . consider reading only if you have time  *****

I am new this forum.We are from India  living in USA. My husbad has a stressful job ,meddling mother,  and last but not the least green card problems hence vitiligo i guess. I initially visited this forum in April 2007 when my husband was first diagnosised with vitiligo. I was looking for the right medicine, whats best than  finding from others experiences.It has been 6 months now.I have seen some improvement with my husband white spots. He had one thumbsize white spot on fore head its 25% gone. One not so white  1.25 cm spot on cheek 90% gone and some 3 cm spot right below it ,40% gone.around groin aread and armpit no improvement and very little improvement on the finger. My husband is too shy to post his pictures and i would really like to post them once they are completely gone. I am an optimistic person.

I searched online a lot and saw so many products and was confused as of what is real or scam.I found one entry in oralhealth.com. For some reason i totally trusted her posting. I am very skeptical about online postings because you never know if its a real posting or its some kind of an advertisement(scam).

Based on one posting we contacted the doctor and sent the pictures. on the phone she gauranteed 100% results for his case (probabbly depends on how long you have it or i dont know..some one posted that it cured her sisters vitiligo and that she had for so many years). The doctor adviced us to  take the medicine properly on time with the rite diet. My husband is lazy and stubborn and is not taking his medications as directed (regular intervals and right dosages). May be it would have helped more if he followed the prescribed diet and took medications on time. He had general check up done and was diagnossised  with fatty lever so he stopped the medicine for almost a month but not completely though.He used to skip now and then . But i am happy with the reults so far. We havent had liver biopsy done yet. Sometimes autoimmune problem with the liver can cause vitiligo. Guys  get a general check up done too.

The doctor asked him not to eat the following.
Meat, eggs, choclates, tartaric acid, lemon, basically all sour stuff . Absolutely no processed food. No bread and dairy products hahahaha.
 But we have been eating bread and dairy products but not as much as we used to before. In USA you can not completely avoid processed food either so we eat it now and then.
Before that we used to eat all the junk available in market like twinkies etc.
we have been eating colored vegetables too as they help in repigmentation but not that relegiously.

Medicines:
Well the doctor is in India..thats a small drwaback. We had to have them posted to USA. It was not easy.She prescribed Ayurveda (5000 year old medicine) and the homeopathy. She asked my husband to drink i cap full of ayurvedic extract and eat some kind of herb early in the morning and at night. He says it tastes aweful. After that homeopathy medicines every 2 hours until 8:00pm. He says if you take it with out eating breakfast or lunch it really upsets stomach.

So far the results are good and i am optimistic about it.Last but not the least little exercise, summers and lord staynarayans blessings helped so far.

Well if you are still reading my post..........................

contact address of the doctor
Dr. R.Vimala
A-3, Ansary Flat, Madley Road,
T-Nagar, Chennai 600017.
Ph: 044-24342877

original posting:
http://www.otherhealth.com/archive/index.php/t-664.html

The doctor speaks english but difficult to understand.She does not have a website or anything . Well you have to call her.

I will write my next email when its completely cured. Till then have a great time. Dont worry be positive.

Hi,

Thanks for putting info. Can i have her(Dr.Vimala) phone no. The number you have memtioned is old.

Please copy to my personal mail id also(sreeramg@hotmail.com)

This is bit urgent.

Regards,

Sreeram