Vitiligo Support Forum

I HAVE VITILIGO , HAD IT FOR ALL MY LIFE AND STILL HAVNT GOTTEN OVER WHAT GOD HAS MADE ME . IM DEPRESSED ALL THE TIME DONT WANT TO WEAR SHORTS OR DRESSES THIS BULL -SH-IT IS NOT FAIR I CANT KEEP A BOY FRIEND BECAUSE THEY THINK SOMETHING IS WRONG LIKE I HAVE AIDS OR SOMETHING .

I NEED A FRIEND SO IF ANYBODY BODY WANT TO MAKE A FRIEND THEN PLEASE

EMAIL ME : WEWENT@MAIL.COM LOWER CASE

i feel the sameee way. i understand.. i hatee wearing shorts.. so i dont and sweat my ass off in the summer. my ex's dont know i have vitiligo but im soo shy idk how i even had them as boyfriends. how old are you? and do you ahve myspace.. or aim screen name so we could talk?

-jessyka

i know how you all feel i started getting it about 5yrs ago and now its on my arms legs back everywhere pretty much, i started getting tattoos to cover the more noticeble ones on my arms but i still feel self concious about it and that holds me back from doing things in life that normal people do like making new friends, talking and meeting girls and just wanting to go out and hang out with friends sometimes. im from michigan and there is a news guy named lee thomas that has it real bad he is african american and his is really noticble but he did a storie and talked about it on the news a couple times and i really took comfort in him talking out about his situation i think it really does help to talk to other people that has this condition! i just found this forum and i want to thank whoever started it!

 I am 26 year's old. I have had it since the age of seven. In my older age it has started to bother me alot. I have very supportive friends and a supportive partner.But deep down inside. I hide my pain and sadness. I act strong on the outside but with all the looks its starting to finally wear me down.

 I have it pretty much every where and I have been looking for cures and what ever may work. I have never had a friend with it but it would be nice to talk to someone who is going threw the same thing. What I hate about it most is the question I alway's get asked. Are you a burn victum? Or what happened to you?

 So if anyone needs some support like an email friend who is going threw the same thing please feel free to email me maybe we can become support for each other.

 Findingnem04@aol.com

Hi there,

 

this is first time ever i have joined this forum.

I c lot of disgust & hatred in the mails. I too have vitiligo for years. but that doesnt limit me- socially. I have too many friends & i am ok with my life & thankful to God.

yes- there are few things I cant do - I cant wear all I want to- I may never get married- I will have to bear some sic people.

At the same time there are so many things which other ppl cannot do as well. So I have accepted  all that & I am fine with it. I recommend everybody to accept it. u only have to choices to accept it & live happily - or not to accept it & crib about it always..

 

I've been thru the same thing there is HOPE. I'm 27 and African American and i can understand ur pain. Mimi

You guys are all lucky. I have it on my face! ugh... I've only had it for about half a year but it's driving me insane. I'm willing to do anything to get rid of it (except jump off a cliff). I've been to countless doctor's appointments and I missed a lot of school in the meantime. I'm trying to see a dermatologist but public health care is so friggin slow! And then I can't catch up with my schoolwork I've missed at home because of more appointments and after dinner I have this routine that takes the rest of the day. I never have time to do my homework and I'm falling really behind in school. I got this trad. chinese medicine and there's some that I have to eat (tastes horrible) and some I have to apply on the vitiligo parts for 20 mins. And then I have to eat melatonin which makes me sleepy and stuff so I can go to sleep at 9pm! I used to sleep at like 11~12pm everyday but ever since I got vitiligo, my parents want to change my bedtime cuz they think that'll cure vitiligo. :P Well there's a lot of other stuff I must do... I'm actually seeing a bit of improvement and I really want to see that dermatologist... but it is getting better and I just have it on my left cheek, ear, forehead and eyebrow. And this guy in my school keeps on sayin 'face cancer' everytime he sees me and it's really bothering me but I pretend I don't hear. :P Well at least I have lots of friends and two best friends that I can always spill my guts to. :)

Hello Jadeluv,

I would like to know what you are using and where did you get it.  To help for now you can use a sunless tanning lotion that will hide the vit for now.  You may want to wait until you are out for the summer and experiment with different brands until you find the one that best matches your skin color.  My daughter uses it and it helps cover it up, you can barely tell that there is something wrong.  Go to the pigmentum post on this forum, there are several people on that one with alot of good information.

hi I also have vitiligo all over and I wanted to let you know that I had alot on my face.  My derm prescribed me a steriod cream called Apexicon E cream .05%.  It worked really well. I hardly have any on my face and believe me I had alot.  All around my eyes and mouth, under my nose.  It took about 3 months before I could see good results. Once my face was back to normal I started working on legs and arms.  This is good stuff.  One thing I noticed is since my face had cleared up I concentrated on the rest of my body and didn't think I needed to apply it to face anymore but just recently noticed a small dot coming back under eye.  My derm said once vitiligo is gone it can come back so I need to still apply cream few times a week. Without insurance its pretty expensive like $120.00 for 60 grams.  Now I have insurance and its like 10 bucks.  Hope this helps..I know your pain.  Hang in there.

I'm 21 years old  and I've had vit since i was 13. It just started as a small patch and it just spread like a wild fire...i mainly have it on my hands...i'm lucky not to have any patches on my face though...:)). Its not a serious disorder, but its just annoying. I've tried many different types of treatment...and it just broke my parents' heart each time a treatment failed...:((.. im currently on Narrow Band UV-B treatment, and vitix skincare gel...i just started a few days ago...i'm just praying that it works..

I'm a 3rd year medical student, so its even more embarrassing...especially when they're teaching us about vitiligo (its humiliating for  me,and the professor..lol) .....i try to be confident...especially in front of my patients...but its really hard...i just really want to get over this...

We all will get over this...its not a serious disability...we just need to be confident in ourselves...and have confidence and faith in our doctors and our treatment....:))) Keep in touch...let me kno what treatment you are taking...

I understand when I was about five my first spot came on my foot the humiliation started immediately when my mom called me spot. It has only gotten worse. I'm forty-four now it is only worse I hate summer at least in the winter I can cover my body. Protopic helps but read up it is very expensive and may cause cancer. Best wishes to you.

hi, i know what u feel, i undrestant too. i have had it since i was 6, the first spot on my hand, after burninig by boiling water, i have anemia too and i think there is a relation. im now 25 and it is wearig me slowly . i had it around my eyes too but there isnt any now! with  UV therapy and metoxalen . but the other area on my body ... .  oh i married 3 years ago and i fear about future about my husbands tolerance!

HI ,zahra_m this is  wilddog,i read ur post where u mentioned that some of ur white patches were cured by UV therapy ,Can u kindly pls tell me what u exactly did,bcos even i am trying this UV light treatment from a month and not seeing much improvement.my condition was stable but recently i have got a patch on  my neck .it is the first time that i have got vitiligo on an exposed area. i need help.

 

Hey evri1 my Names ricky and iv had vitiligo since i have been 8yrs old mine started on my top left eyelid and started spreading from there i have it all over now and im at the age of 18 now. Finished High school but when i did start High school daym secound week i got into a fight because some kid was saying things about me but i didn let him talk over me i knocked the S**** outta him and ever since that day no1 in high school said or looked at me differently they all start liking me lol  ....

itz a shame though you gotta go through living life a different way you still get the looks and questions asked all the time and as yous all know it gets fustrating and all but all we can do is just prey that one day we will get alright and that their will be a cure for this disorder. At the moment i jus orderd Lecotin and i havnt tried it yet would anybody know how it is like if its effective or not ..

enyways Friends if you's wanna chat or enyfing diz ma addy ricky_g_23q@hotmail.com add me on msn and well chat

CYA

hello everyone,
This sounds like a miracle cream, does it have any strange smell at all? I just wondered if you had tried this one at all: herbal treatment ? It sounds so good and it says it is natural, or is it only the steroid ones that will work? Thanks.

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