Vitiligo Support Forum

Hi there! 

I am so new to this.  My 3 yr old twin daughter started getting white spots in her groin area about 6/8 month ago, didn't think much at 1st but when it started to grow we took her to see the Dermo.  He gave us Protopic and said come in 6 months!!!!  We are devestated as to what to do next.  I have noticed few spots on her neck also. 

Has anyone seen this in a child?  Why did thsi happen to her?? She is just a child with no illness!  Does she lack any vitamins?  We are vegetarians.  She eats a healthy balanced diet. 

Pls kindly advice us on what we should do.  Protopic seems to be itching her, & she seems to be scraching, makng it worse.  is that common??  Pls give us any information that can help. 

Much appriciated

Lena

I am going to tell you some very important things

1. no one knows the cause of vitiligo, and there is no cure...protopic does remove the white spots, but it doesnt prevent it from showing up in other areas


2. use the protopic exactly like your doctor told you, on every spot. You caught it early and if it goes away then you are lucky. It is very important to use it every day.

3. If it does not go away, you must try your HARDEST to teach the child to be comfortable in her own skin.

4. How other people will react to her in the future depends ENTIRELY on how she feels about herself


if she is self conscious, other people will be nervous around her

if she is warm and confident, other people will be comfortable with her

please learn from my mistakes, I grew up with vitiligo and I have learned so much

im only 21 and in college

It is really painful for parents to see this in their kids...

I agree with the views... very important that you teach the kid to be comfortable with herself... she can be an amazing person as she grows...

This disorder has a cure especially in kids if caught very early - topical applications dont help and need to be supplemented with oral medication.

I would suggest if you can discuss with your local specialist an approach that few doctors use globally now - "pulse therapy" - a special way of administering drugs and has had positive results - it does not "cure" or "repigment" but the approach is to stop the spread of the patches and needs to be taken carefully over a period of 3-5 years and can only be stopped upon advise of a specialist - during the course the spots repigment themselves if the melanocyte density is good on the skin spots (which another research has indicated remains 20 years post the onset of disorder)...

Hope this helps